New €11.6M ELEVATE Research Programme launched – Focused on Cerebral Palsy at UCC

25th March 2024

Posted In: FYI

On Friday, the Tánaiste, Minister for Foreign Affairs and Minister for Defence, Micheál Martin TD, launched a new €11.6 million research programme focused on Cerebral Palsy at University College Cork (UCC).

ELEVATE, a ground-breaking five-year initiative, has been funded under the Science Foundation Ireland (SFI) Strategic Partnership Programme (€5 million), with co-funding partner The Cerebral Palsy Foundation (CPF) providing a philanthropic donation of over €6 million. The programme will be led by the Irish Centre for Maternal and Child Health Research (INFANT) at UCC, partnering with RCSI University of Medicine and Health Sciences, Trinity College Dublin and all the tertiary-level maternity hospitals in Ireland.

ELEVATE brings together a team of researchers and experts in early brain injury to create cutting-edge AI screening algorithms, devise novel detection methods, explore potential new treatments, and, most importantly, actively involve Cerebral Palsy-affected families in ongoing trials, education, and information platforms.  The programme will also see the establishment of a Cerebral Palsy registry in Ireland, to track the rate of the condition for the first time, and enable access to the best research and clinical trials.

Launching the ELEVATE Programme, Tánaiste Micheál Martin TD, said: “I’m delighted to launch this ambitious new programme, which has the potential to transform lives and reshape the landscape of Cerebral Palsy research and care in Ireland.

The ELEVATE strategic partnership programme marks a landmark investment and milestone in the collective efforts to address what is one of the most pressing challenges in healthcare. We stand on the cusp of a new era in Cerebral Palsy research.”

Cerebral Palsy (CP) is the most common childhood-acquired, lifelong physical disability, affecting about 17 million people worldwide. There is no known cure.

It is caused by abnormal development or damage to the brain before, during, or shortly after birth. Many individuals with CP face significant and unnecessary challenges in their daily lives, including problems with movement, speech, and other body systems. An estimated 150 babies receive a CP diagnosis in Ireland each year and an estimated 3,000 children and young people and 9,500 adults are living with Cerebral Palsy in Ireland.

But these diagnoses are often delayed, with devastating consequences for children and their families. Early intervention and the right care pathways make a significant difference in the long-term outcomes and quality of life for people living with Cerebral Palsy.

Speaking at the launch event, Dr Siobhan Roche, Director, Science for the Economy at Science Foundation Ireland, said: “SFI is proud to be able to support the ELEVATE programme which aims to make Ireland a world-leading hub for research and innovation in early brain injury and Cerebral Palsy. The potential impact of the ELEVATE programme is significant, with the active involvement of patients, clinicians and the Cerebral Palsy Foundation in this important research being key to improving the long-term outcomes for children and adults with early brain injury and cerebral palsy.”

Rachel Byrne, Executive Director of the CPF, said: “The ELEVATE team shares a vision of creating meaningful change in the lives of individuals living with Cerebral Palsy as well as their families.

This partnership will be a game changer for the prevention, diagnosis and treatment of Cerebral Palsy in Ireland.

At the Cerebral Palsy Foundation we are committed to accelerating innovation and pave the way for personalised, evidence-based interventions at the most crucial time in a child’s life.”

President, University College Cork, Professor John O’Halloran, commented: “It’s fantastic to see INFANT spearhead the ELEVATE Strategic Partnership Programme at University College Cork. This programme bolsters our UCC Futures Children collective and advances our commitment to research excellence, global engagement and societal impact. We are very appreciative of Science Foundation Ireland and The Cerebral Palsy Foundation’s support, which highlights the importance of fostering innovation and collaboration to address real-world challenges.”

ELEVATE will be co-led by Prof Geraldine Boylan (Neurophysiologist and Professor of Neonatal Physiology at UCC) and Prof Deirdre Murray (Consultant Pediatrician and Chair in Early Brain Injury and Cerebral Palsy at UCC).

INFANT Director, Professor Geraldine Boylan, stated: “We are very excited to lead this transformative research programme at INFANT alongside our partners and are very grateful to SFI and CPF for their support. Families affected by Cerebral Palsy are integral to our work, guiding us at every stage.

By enhancing the prevention, detection, and treatment of early brain injury and Cerebral Palsy in Ireland, we are dedicated to providing better outcomes for both the child and the family.”

Pictured in UCC at the launch of the €11.6m ELEVATE research programme on cerebral palsy were (left-right): Prof. Deirdre Murray, ELEVATE Co-Lead, Prof. Geraldine Boylan, ELEVATE Co-Lead, Prof. John O’Halloran, President UCC, Tánaiste Micheál Martin TD, Rachel Byrne, Executive Director, Cerebral Palsy Foundation (CPF) and Dr Siobhan Roche, Director Science for the Economy, Science Foundation Ireland (SFI). The initiative is co-funded by SFI and CPF. (Image: Ger McCarthy).